Monday, November 16, 2009

Looking for Legs...





Check out these photos that we were sent! What a little champion! If any of you have information on this little boy's prosthetic limbs, or limbs suitable for small kids with short stumps, please let us know. Thien Nhan has been having a lot of trouble with his prosthetic leg, which is heavy and falls off constantly. We are desperate to find him a better-fitting alternative. Thanks!

Wednesday, November 11, 2009

There Were Four In The Bed...

Just when Thien Nhan and his two big brothers were all finally free of the flu, their mom, Mai Anh, fainted and hit her head. She ended up in hospital where CAT scans revealed that she'd suffered swelling of the brain. Luckily, with rest, she will recover! The family deserves a "frequent customer discount card" at the local hospital, of the type handed out in coffee shops...

Ordered to rest in bed, where she's hooked up to an IV, Mai Anh has had good company. Check out this adorable picture of the three boys, sleeping like angels!

Friday, October 30, 2009

Get Well Soon!

Talk about a rough month! A couple of days after getting back to Hanoi, Thien Nhan caught the flu from his big brother, Little Minh, who'd been bedridden for some days already.


"Thien Nhan had a high fever for three nights," reports the kids' mom, Mai Anh. "He was very well behaved even though he was sick. He didn't make a fuss and he took all his medicine."

Unfortunately, due to his high fever, he wound up in the local hospital, where he was given fluids via an IV (photo).

Get well soon, Thien Nhan!

The family is still waiting for the results of Thien Nhan's hormone tests, done during his recent trip to Texas.

Wednesday, October 21, 2009

Houston Zoo

The day before Thien Nhan left Texas, a group of his supporters took him to the Houston Zoo. "Thien Nhan was really excited to see so many animals," said his grandma, Kim Anh. "He had an excellent day."

Having spent three weeks in Houston undergoing medical tests, Thien Nhan, 3, is now in the middle of a 30-plus-hour flight back to Hanoi. "He will arrive tomorrow," said his mom, Mai Anh. "Both of his brothers had the flu but are feeling better now. They are looking forward to seeing him and I know that he will be very happy to be home too."


Sunday, October 18, 2009

Waiting for Results




















In this photo Thien Nhan, 3, is comforted by his dad as he receives the last in a series of injections that he needed in order to test his hormone levels.

"The shots really hurt. He was so brave but he could not stop crying," reported the toddler's dad, Nghinh. "I felt terrible but there was nothing that anyone could do to help him. He just had to go through it."

Having been in Houston, Texas for the past three weeks, Thien Nhan will fly back to Vietnam tomorrow.

The results of the hormone testing should be available in some days. If the tests indicate that Thien Nhan's undescended testicles are producing testosterone, he will return to Houston for major surgery in early 2010.

"He is very eager to go home," said his dad. "He misses home and especially his big brothers."

Thursday, October 15, 2009

Water Fun


While much of Thien Nhan's stay in Houston has been spent in hospital, the tot has managed to have some fun too. Here's a picture of the little guy during an outing to a local water park.

Monday, October 12, 2009

Help in Houston

Many thanks to Kids Without Borders' volunteer Susan for helping to make Thien Nhan's stay in Houston easier and more enjoyable. Susan and her sister have helped the family with transportation, dinners, etc. Yesterday, a friend of Susan's drove Nhan to his doctor's appointment.

Here's a picture of Susan, Thien Nhan and Susan's friend, Vu. Cam on!
To learn more about the Seattle-based volunteer-run Kids Without Borders go to http://www.kidswithnoborders.org/Home.asp

Extended Family

Since Thien Nhan's mom, Mai Anh, had to return to work, she flew back to Hanoi last weekend. Unfortunately, upon arrival she learned that one of her other two sons, Little Minh, 4, was running a fever. "It was a 39-hour trip and Minh's fever was 39 degrees," said Mai Anh. "So I got home and was up all night."

Thien Nhan's dad, Nghinh, then flew from Hanoi to Houston to "take over". Luckily for Thien Nhan his wonderful grandma, the acclaimed poet Kim Anh, will remain in the States for Thien Nhan's entire stay.

On Monday, Thien Nhan had his first appointment with Dr. Karaviti, who is administering a complicated test to determine whether or not the boy's testes are viable. Thien Nhan received his first HCG shot. He will receive two additional shots this Wednesday and Friday and have a blood test on Saturday. The results should be available in one week.
[Photo shows Thien Nhan, in red, drawing with friends and his grandma, Kim Anh]

Wednesday, October 7, 2009

A Difficult Process

Thien Nhan, 3, is now in Houston, Texas waiting to begin a 2-week-long process to test his hormone levels. "The test is very complicated and uncommon," explains the tot's mom, Mai Anh. "It involves injecting a vaccine that we must get from another state. So the vaccine is from one state, the test is performed in Texas and then the results must be read in another state."

Unfortunately, the injections are painful and must be administered daily for 2 weeks. "This is the only way to know for sure whether or not his testes are producing testosterone," says Mr. Greig Craft, the American philanthropist who arranged Thien Nhan's treatment in Texas. "If they are, he will need major surgery to retrieve them and place them in a reconstructed scrotum. This would happen early next year."

For the last 2 days, Thien Nhan has been complaining of stomach pains and rushing to the potty a lot. "He hasn't eaten anything unusual so I think it's stress," says Mai Anh. "He is homesick and nervous. This is a lot for a 3-year-old to understand. He is tired."

Tuesday, October 6, 2009

Homesick in Houston

Having been in Houston for more than a week, Thien Nhan is homesick. "Me oi, I want to go home and play with my brothers," Nhan told his mother, Mai Anh, speaking about his brothers Big Minh, 10, and Little Minh, 4.

"All day long he begs me to phone home," says Mai Anh. "He misses home and especially his big brothers."
[Photo shows Thien Nhan (on stool) with his brothers and cousin, back in Hanoi.]

Saturday, October 3, 2009

5-Year Plan

After examining Thien Nhan, urologists and plastic surgeons in Texas are optimistic that the reconstruction of a functioning penis can begin in just 5 1/2 years, when Thien Nhan is 9. The reconstruction should be made easier thanks to the fact that a portion of the boy's penis (now tucked under the skin) remains intact.

"Nhan just wants to be like his big brothers and the other boys in his class," says the toddler's mom, Mai Anh. "The older he gets, the harder it will be for him emotionally. We are very happy that these doctors are able to help him."
[Photo: Thien Nhan undergoing a pelvic exam at Texas Children's Hospital while his mom comforts him.]

Friday, October 2, 2009

Anxious for Help

Before Thien Nhan went to bed, his mom, Mai Anh, explained that he'd be going to hospital the next day to meet doctors who would help to fix his "willy".

"The doctor's appointment wasn't until noon but Thien Nhan woke up very early and started asking if it was time to go see the doctor yet," reports Mai Anh. "I felt sad for him but proud of him too. He is so smart and brave for a three-year-old."

To see a brief video of one of Thien Nhan's exam at Texas Children's Hospital, go to:

http://www.youtube.com/watch?v=HqiKFQfi0OQ

Thursday, October 1, 2009

Report from Houston

Since hearing of Thien Nhan's plight some years ago, Hanoi-based philanthropist Greig Craft has worked tirelessly to raise funds and find surgeons willing to take on this challenging case. Making time in his very busy schedule as the head of an injury prevention foundation, Mr. Craft has accompanied Thien Nhan, his mom and grandma to Houston, Texas, from where he sent this report:

A medical team at Texas Children's Hospital led by Dr. Lars J. Cisek, a pediatric urologist and Thien Nhan's coordinating physician Dr.Tue Dinh, a noted plastic surgeon, conducted a detailed exam of Thien Nhan's pelvic area. Dr. Cisek's initial assessment is that what doctors in Thailand and Vietnam believed to be testes may in fact only be internal scar tissue from the original trauma. If true, surgeons can still enable Thien Nhan to become a fully functioning male, although he would be unable to father biological children.

To determine the existence and viablity of the boy's testes, a series of injections will be given to Thien Nhan in the US over the next 14 days, followed by chemical analysis of his blood. This is a painful but essential process for Thien Nhan.


If the outcome is positive, the surgeons will conduct a Laparoscopy (inserting a tiny camera under anasthesia) to locate the testes. Internal scar tissue could make this a complicated procedure. Assuming that the testes are successfully located, major surgery would be needed to extract them. Dr. Tue would operate on the groin area, create a new scrotum from skin tissue, and relocate the testes. If the testes are not functional, hormone therapy will be the solution.

We'll know more in coming days, and will keep you posted as soon we learn more. Thanks for your ongoing support and love.

[Photo: Greig Craft carries Thien Nhan in the hospital]

Wednesday, September 30, 2009

Testing, Testing

Yesterday and today, Thien Nhan underwent various tests and exams in Houston to determine the extent of the damage to his genitals. "I think we have found the right doctors here," reports the toddler's mom, Mai Anh. "Dr. Tue Tinh is very kind and genuine. All of the doctors answer our concerns very clearly and logically."

Unfortunately, preliminary tests suggest that Thien Nhan's undescended testicles are unlikely to be viable. This would be a major blow. If the boy's testicles no longer produce testosterone, he will require hormone replacement therapy for the rest of his life, and be unable to father biological children. More tests will be performed this week. "We just have to wait and see," says Mai Anh.
[Photo, left to right: Thien Nhan's grandma, the poet Mrs. Kim Anh; surgeon Dr. Tue Tinh; Mr. Son Michael Pham of Kids Without Borders; Thien Nhan; mom, writer Mrs. Mai Anh; trip organizers Ms. Na Huong and Mr. Greig Craft.]

Monday, September 28, 2009

A Good Boy

"Thien Nhan hardly slept at all on the plane," says the toddler's mom, Mai Anh, speaking about their 36-hour trip from Hanoi to Houston.

"He is exhausted and jet-lagged but has been very well-behaved. I think he understands that we are here to help him. He is worried about the hospital but is trying his best to be a good and brave boy."





To view a video about little Nhan's visit to Houston, go to http://www.myfoxhouston.com/dpp/news/local/090927_miracle_baby_help

Sunday, September 27, 2009

Welcome to Houston!

Want to welcome Thien Nhan to Houston? The local community and Seattle-based non-profit group Kids Without Borders will host a welcome party for the boy on Sunday September 27th at a Galleria Hotel from 2pm to 6pm.

For more information, please contact http://ca.mc315.mail.yahoo.com/mc/compose?to=info@kidswithnoborders.org. If you would like to contribute to cover expenses for Thien Nhan’s surgeries, make online donation from KWB's website and enter Miracle Baby in ‘designation’.


To view a video of little Nhan's arrival in Houston, go to:

Thien Nhan's In Texas!

Thien Nhan, 3, has arrived in Houston, Texas, where he is to undergo the next stage of surgery to repair his genitals.

"We are exhausted following a 36-hour trip," reports his mom, Mai Anh. "We will rest up before meeting Dr. Tue Tinh. Next week Thien Nhan will undergo tests in preparation for his surgery."

Dr. Tinh, a plastic surgeon who specializes in genital reconstruction, has volunteered to work on the toddler free of charge. Fundraising activities are ongoing to pay for associated costs (hospital fees, anaesthetist, medication, etc). This is the second of an estimated four or five surgeries that Thien Nhan will require to rebuild his genitals.

The photo shows Thien Nhan resting at a stop-over in Narita. Check out a video of the tot on his trip from Hanoi to Houston at: http://www.youtube.com/watch?v=0Ip4E88IFCU

Thursday, September 17, 2009

Scans & Tests

Two days ago, Thien Nhan underwent US$3,000 worth of CAT scans and tests at the Viet Xo Hospital in Hanoi. These scans were then forwarded to Dr. Tue in Houston, Texas, who will review them to plan for Thien Nhan's upcoming genital surgery.

While Thien Nhan, 3, was put under full anaesthesia for the CAT scan, he was awake for some other scans and tests. "The doctor told him that he could scream as loudly as he liked but he could not move," recalls his mom, Mai Anh. "It was amazing but that was exactly what he did. He lay as still as if he had been glued to the table but cried a bit, since it hurt." She goes on to say: "I felt so sorry for him. He looked so small lying on the examination table and then even smaller when he went into the big CAT scan machine."
After studying the film, the Hanoi doctors are hopeful that one of Thien Nhan's undescended testicles might prove viable. Since Thien Nhan suffered major genital damage when he was attacked by wild animals shortly after being abandoned at birth, this would be great news. The US doctors will review the scans later this week.

Monday, August 31, 2009

Leg Up



















This week, Thien Nhan, now 3, went in get his prosthetic leg refitted. He is receiving free prosthetic care from Coeur de Bambou, a French non-profit group with a prosthetic lab located next to the Hanoi French Hospital.

"Since his leg stump is so short, it is very hard to get the fake leg to fit right," says Thien Nhan's mom, Mai Anh. "It falls off a lot and is not very stable. He can only use it if he is leaning on his frame walker."

Each day, Thien Nhan must spend several hours practicing with his prosthetic limb and walker. "He can move much faster without it," says Mai Anh. "But he knows that he has to practice. It is very hard for him."

Sunday, August 23, 2009

Quality Control



















Little Minh (left) and Thien Nhan are in charge of Quality Control Testing at Bubbafish, the little toy business owned by their mom, Mai Anh, and their Aunt Elka.

Here the kids are testing a zebra and a dog -- new samples for the Christmas season. Bubbafish gives a big chunk of sales to Thien Nhan's surgical costs. If you know of any retailers or distributors that might be interested in selling these handmade plush toys in the run-up to Christmas, email Elka for product info at elkeray@yahoo.com